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ELPA

European Liver Patients’ Association

Rue de la Loi 235, box 27
1040 Brussels
BELGIUM
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Team Leader

Marko Korenjak

ELPA President
Phone: +32 471 527 706
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Team Staff

Milan Mishkovikj

ELPA Board Member
Phone: +38 978 368 557
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Veronika Všetičkova

ELPA Office Manager
Phone: +32 478 155 224
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Institute Presentation

ELPA is an umbrella association, representing 31 members from 25 countries. Our aim is to promote the interests of people with liver disease and in particular: to highlight the size of the problem; to promote awareness and prevention; to address the low profile of liver disease as compared to other areas of medicine such as heart disease; to share the experience of successful initiatives; to work with professional bodies such as EASL and with the EU to ensure that treatment and care are harmonised across Europe to the highest standards.

Within medical research project DECISION, ELPA is responsible for the communication and dissemination of the research results, and any other information that can be beneficial for patients and patients’ community. ELPA is actively engaged in the translation of the project results and milestones to »patient-friendly« language and incorporates the patient’s view during the dissemination process. The process of communication and dissemination involves all ELPA’s communication channels and we actively participate in events that are organized by the DECISION project management team. The main objective is the development of a communication strategy and dissemination plan aimed at potential stakeholders of the EU member states, namely patients, health care professionals, pharma and biotech companies, healthcare insurers, international professional networks, and the general public. The strategy includes some of the following specific aims:

  • to make medical research project DECISION known to all stakeholders
  • to disseminate the results to the scientific and medical community, healthcare, pharmaceutical and policy sectors, and the general public and foster interaction and exchange with patient organizations
  • to exploit and valorize the intellectual property rights and safeguard the sustainability of medical research project DECISION results
  • to incorporate new knowledge on tests and combinatorial therapies into (inter)national clinical guidelines and inform patient communities of the benefits for the patients
  • to prepare the next generation of scientists in the field of liver research

ELPA also participated in setting up the protocol and finalization of the protocol along with the University of Bologna (UNIBO) in close collaboration with the European Foundation for the study of chronic liver failure (EFCLIF), the participating clinical partners, University of Barcelona (UB).