European Liver Patients’ Association
Schuman Roundabout 2-4, Level 6Visit website
ELPA is an umbrella association, representing 31 members from 25 countries. Our aim is to promote the interests of people with liver disease and in particular: to highlight the size of the problem; to promote awareness and prevention; to address the low profile of liver disease as compared to other areas of medicine such as heart disease; to share the experience of successful initiatives; to work with professional bodies such as EASL and with the EU to ensure that treatment and care are harmonised across Europe to the highest standards.
Within medical research project DECISION, ELPA is responsible for the communication and dissemination of the research results, and any other information that can be beneficial for patients and patients’ community. ELPA is actively engaged in the translation of the project results and milestones to »patient-friendly« language and incorporates the patient’s view during the dissemination process. The process of communication and dissemination involves all ELPA’s communication channels and we actively participate in events that are organized by the DECISION project management team. The main objective is the development of a communication strategy and dissemination plan aimed at potential stakeholders of the EU member states, namely patients, health care professionals, pharma and biotech companies, healthcare insurers, international professional networks, and the general public. The strategy includes some of the following specific aims:
ELPA also participated in setting up the protocol and finalization of the protocol along with the University of Bologna (UNIBO) in close collaboration with the European Foundation for the Study of Chronic Liver Failure (EF CLIF), the participating clinical partners, University of Barcelona (UB).